Newborn Screening Records

Health care providers, individuals and parents may obtain a verbal or hard copy of test results at no cost by calling the Illinois Department of Public Health Newborn Hearing Screening Program at 217-782-4733 between 8:30 a.m.- 5 p.m., Monday through Friday. To obtain a copy of the results, a consent form must be completed. Reports will then be mailed, faxed or sent by e-mail. A separate consent form must also be completed if you wish to receive the results by electronic mail.

• Health Care Provider Consent and Authorization to Release Newborn Screening Results - PDF
• Parent/Individual Consent and Authorization to Release Newborn Hearing Screening Results - PDF
• Authorization to Utilize Unencrypted E-mail to Communicate Protected Health Information - PDF

Health care providers may obtain a verbal or hard copy of test results at no cost by calling the Illinois Department of Public Health Newborn Screening Program at 217-785-8101 between 8:30 a.m.- 5 p.m., Monday through Friday. To obtain a copy of the entire report, a consent form must be completed by the provider. Reports will then be FAXED or sent by e-mail to your office. A separate consent form must also be completed if you wish to receive the results by electronic mail.

• Health Care Provider Consent and Authorization to Release Newborn Screening Results - PDF
• Authorization to Utilize Unencrypted E-mail to Communicate Protected Health Information - PDF

Individuals, parents and non-health care providers may obtain a copy of newborn screening test results for $25 by submitting a notarized consent form with payment by check or money order to Illinois Department of Public Health. Do not send cash. Cash payments will be returned and will delay processing your request. Allow 10 business days to process the request. Reports will be FAXED or sent by e-mail to the requestor. A separate consent form also must be completed if you wish to receive the results by electronic mail.

Mail completed form and payment to:

Illinois Department of Public Health
Newborn Blood Spot Screening Program
535 W. Jefferson St., 2nd Floor
Springfield, IL 62761
Phone: 217-785-8101

• Parent/Individual Consent and Authorization to Release Newborn Metabolic Screening Results - PDF
• Authorization to Utilize Unencrypted E-mail to Communicate Protected Health Information - PDF

The National Collegiate Athletic Association (NCAA) requires all athletes at Division I and II schools to be tested for sickle cell trait before competing or to sign a written release declining the test.

In Illinois, newborn screening has included testing for sickle cell trait since 1989; however, the Illinois Department of Public Health may not have newborn screening records readily available for all children born in Illinois during 1989. When available, a copy of newborn screening test results, which includes testing for sickle cell trait, will be provided by the Illinois Department of Public Health to individuals 18 years of age and older, to parents of children under age 18 and to college athletic trainers, upon submission of the proper, notarized consent form and payment of a $25 processing fee. Do not send cash. Cash payments will be returned and will delay processing of your request. Allow 10 business days to process the request. Reports will be FAXED or sent by e-mail to the requestor. A separate consent form also must be completed if you wish to receive the results by electronic mail.

Newborn screening results also may be obtained from the hospital of birth, a physician can order a hemoglobin electrophoresis test as part of the sports physical or you can discuss other means of obtaining this test with the college athletic department staff.

For further information about the collegiate athletic requirement for documentation of sickle cell trait testing, visit the NCAA website at http://www.ncaa.org/health-and-safety/medical-conditions/sickle-cell-trait

Mail completed form and payment to:

Illinois Department of Public Health
Newborn Blood Spot Screening Program
535 W. Jefferson St., 2nd Floor
Springfield, IL 62761
Phone: 217-785-8101

• Parent/Individual Consent and Authorization to Release Newborn Metabolic Screening Results - PDF
• Authorization to Utilize Unencrypted E-mail to Communicate Protected Health Information - PDF

• Authorization to Utilize Unencrypted E-mail to Communicate Protected Health Information
• Health Care Provider Consent and Authorization to Release Newborn Screening Results
• Parent/Individual Consent and Authorization to Release Newborn Hearing Screening Results
• Parent/Individual Consent and Authorization to Release Newborn Metabolic Screening Results